Soon after receiving the news of my health situation and rushing me to the specialists at Egleston Hospital (Now known as CHOA) in Atlanta, Georgia, my parents and I reunited for a brief matter of minutes before the decision was made to fast-tracked into a surgical suite. There, I underwent a heart catheterization which showed them the sizable hole in the wall between my two ventricles. At the time, major surgery on newborns was a mostly unheard of idea, so instead, they chose to perform a more temporary measure that commonly helped to buy children a bit more time. The procedure that involved a small incision just below my left breast and the placement of a surgical grade rubber band around the in my heart to keep more fluid from escaping than necessary. The hole between my ventricles was big enough that the rush of blood that was escaping was going fast and with enough force between the two chambers that it could potentially cause a lot of damage if it were to be left to run unchecked. The entire procedure was never meant to be any sort of remedy to the situation so much as a prophylactic measure to hopefully buy me some chance at a slightly extended future. The idea was that hopefully with this band, I would live several more years until A) medical science advanced enough to tell doctors how to fix this problem and B) my body had matured and developed enough to withstand the type of surgery that would have entailed.
My stay at Egleston lasted for about six weeks. They performed the surgery when I was 2 days old and afterwards they kept me all that extra time to monitor my medications. I had a lot of trouble with eating at the time and ended up losing two pounds in all my time in the hospital. I went from being the biggest baby in the nursery where I was born to losing a solid 2 pounds in just my first few days. It got to the point that they began adding a special formula to the milk they fed me to give me some extra calories. My entire family remained on pins and needles for the first couple of weeks of my stay. Eventually, my dad ended up needing to go back to work while my mom stayed on maternity leave and my Grandmothers from both sides, Grandmother Foster and Grandmom Ward stayed with my mother and I at the hospital the entire time.
My parents had told me sugar-coated versions of all these facts and stories as I grew up, because I was a curious child who always knew I was different from other kids and wanted to know why. I knew I had a heart problem and I knew that one day I would need to have another surgery to fix the problem. We just didn’t really talk much about what could happen if I didn’t get the surgery or how dire my situation had been. It’s part of why, despite my particularly extreme circumstances, I feel like I had a relatively happy childhood. I wasn’t abused, I didn’t live in poverty, (although there were some rough times in our later years, but that’s a story for another time) and I never felt unloved in those early years. Even when friction began to build in my parent’s marriage, they managed to keep my brother and I insulated from it.
As a teenager, well beyond the years of my getting through the second surgery and seeing a marked improvement in my health and well-being, I started asking more questions of my parents, who had long since divorced and become more apt to sharing some of the more darkened details of the circumstances of my formative years. The biggest revelation I had revealed to me was that my grandmother and grandfather, who had bought a cemetery plot for themselves at Brooks Cemetary in Brooks, Georgia, had sent my Aunt Kathy, one of their older daughters out of the hospital on the day they heard the news about my defect diagnosis to buy a small piece of space for my remains to go, in the seemingly very likely event that I passed in the days that followed. Since my grandparents have passed, we haven’t been able to find record of whether or not that space of land is still sitting there in my name. For all we know it’s been sold off a long time ago and is occupied by some other departed soul. One thing remains for sure, the idea of having a grave site waiting for you practically all of your life can have a, shall we say, dramatic effect on a young man as he grows forward into adulthood.